A few things that have come in handy this week:
A "pre-eminent scholar" in epilepsy research making a few calls for us.
A parent who knows "pre-eminent scholars."
A lawyer brother who is investigating whether the PN acted discriminatorily or unethically. Unasked.
A department head trying to cover his @$$, and promising us an appointment at our earliest convenience, or an urgent referral to another neurology clinic. (I think he would be quite glad to see the last of us.)
A paediatric epileptologist calling from across the country, genuinely concerned about our daughter, and offering her services.
It would be handy to have everything confirmed and be ready to leave tomorrow, but it will probably be another week before we can finalize things. I can deal with another week much more easily than 6 months.
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About Me
- That Mommy
- I'm a 20 something mother of three wonderful girls. I keep busy managing their care and finishing off a masters degree.
That Blog
That Blog came about as a way to celebrate the moments in the post-adoption months that seem too insignificant to write down in the Adoption Book but appeal to my nostalgic side nonetheless.
Kid1
The (now) middle child who people remember for her big smile and easy-going personality, Kid1 is moderately physically and mentally disabled, g-tube fed and has a cochlear implant. She has her own (non-anonymous) web page where I talk about her all. the. time., so she doesn't get much coverage around here.
Kid2
Cute, in that 'not an infant, not quite a toddler' sort of way. Kid2 had a long stay in the NICU and reminds us daily what a blessing she is.
Kid3
Paradoxically, Kid3 is the oldest of our three girls. Originally from a small country that most people seem to think is a part of Russia, she became a part of our family in November 2007. Her interests include getting up in the wee hours of the morning, and correcting my poorly spoken "Russian." She's the true star of this blog.
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2 comments:
wow! this is all very exciting! i am so glad that you worked so hard, and were lucky enough to have some connections to work, and that luck was on your side with the new doc, and that you will soon have a real evaluation. xoxo
hope that you got there in one piece, and have some more info now. thinking of you. xoxoxo
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